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'The system is broken'

10-21-01

By KERRY HALL, Staff Writer
News & Record

First in a three-part series.

North Carolina's nursing homes are in crisis.

Thousands of aged and infirm residents go hungry each day, according to state inspection records. Some people are left for hours lying in their own waste, leading to life-threatening infection. Others are being physically or emotionally abused.

Since the series

  • Nov 4: Constructive criticism


    Graphics

  • What state inspectors found in Piedmont Triad nursing homes
  • Problem-free homes
  • Top 10 citations in N.C.


    Series timeline

    Day 1: More people are unhappy with the quality of care provided by nursing homes than ever before. Complaints are up, as are the number of problems found by state investigators. Greensboro resident Jennifer Riley knows firsthand the heartache of having a loved one in a home where she found the care inadequate.
  • 'The system is broken'
  • Penalties come slowly to problem homes

    Day 2: As a 13-year-veteran in long-term care, Tabitha Whitmore is a rarity. She and employees like her perform some of the most necessary -- and unpleasant -- tasks. Nursing homes are desperate to hire more workers like her, but such people, and the money to pay them, are difficult to find.

  • Filling the Void
  • Homes struggle to keep pace with costs

    Day 3: Leonard Testa had grown mute and immobile during his stay at at one nursing home. Then his family moved him to a different home, and Testa started walking and talking again. More importantly, family members say, Testa felt safe and surrounded by loving people when he died. Good relationships between nursing homes and families benefit everyone, say advocates for the elderly. Solutions to improve long-term care exist, they say, and some are simpler than one might expect.

  • His final days
  • Lawmakers, public can help improve care
  • Things to consider when looking for a nursing home


    To our readers:

    Six months ago, state investigators took action against Greensboro nursing home Carolina Commons Healthcare & Rehabilitation Center. They found that employees failed to monitor blood pressures, administer the correct dosage of medicine and provide proper hygiene, among other things.

    Staff writer Kerry Hall began an investigation into state records to examine the quality of care available in Triad nursing homes.

    Hall found that quality varies -- widely, at times.

    Some homes succeed against unfavorable odds, improving residents' lives while struggling with inadequate funding and staffing shortages.

    Other homes fail to properly train workers; or worse, they fail to provide enough food and water to keep residents nourished, potentially leading to serious illness, even death. Starting today, the News & Record presents three days of stories examining a looming crisis among nursing homes, a crisis that has the potential to affect two out of every five Americans who will need homes at some point.

  • Industry advocate Craig Souza acknowledges: "The system is broken." And he predicts that things are only going to get worse -- a consequence of the state's financial woes.

    Already, 86 percent of the 425 nursing homes in the state violated federal regulations last year. Complaints from the public have more than doubled since 1996, meaning more North Carolinians are unhappy with the care being provided by nursing homes than ever before. Staff turnover for the industry approaches 100 percent annually, and one in every five homes in the state operated in bankruptcy last year.

    Things are so bad that both nursing home operators and regulators wonder how the industry will survive. Yet, two of every five Americans are expected to one day need a nursing home. Today, more than 37,000 North Carolinians live in them.

    "It's a terrible crisis," said Janet Wells, director of public policy for the National Citizens' Coalition for Nursing Home Reform, a patient-advocacy group based in Washington, D.C.

    "There is a lot of malnutrition and a lot of dehydration out there."

    •••

    When Greensboro resident Norma Jean Sutherland arrived at a local nursing home last fall, the last thing her family expected was for the feisty former bank executive to be ignored.

    Yet, during Sutherland's nine-month stay at Carolina Commons Healthcare & Rehabilitation Center in Greensboro, Sutherland's daughter, Jennifer Riley, said she would find her mother in dirty diapers, just as she had left her hours earlier.

    The fashion-conscious retiree was rarely bathed and often dressed in mismatched outfits, Riley observed. Workers occasionally gave the 60-year-old the wrong dose of medicine, state records show, and disregarded her cries for help, Riley said.

    Although the treatment did not severely harm Sutherland physically, it crushed her spirit.

    "She went from being a career woman to being a beaten-down shell," Riley said. "She got used to no one helping her."

    And Sutherland is not alone. Neither is Carolina Commons, whose officials declined to comment.

    •••

    The News & Record examined federal and state records and talked with nursing home residents and employees. Research showed:

  • Complaints against nursing homes statewide more than doubled from 996 filed five years ago to almost 2,300 filed in 2000.

  • The number of complaints verified by state investigators more than tripled to 1,102 during that same period.

  • More homes had problems last year -- 86 percent -- compared with 75 percent in 1999.

  • Employees are less likely to document changes in patients' physical and psychological conditions, even though it is required by law.

    And Piedmont Triad homes prove no exception.

  • In Guilford County, 17 of the county's 21 licensed homes were cited in recent surveys for problems, such as improper care that caused patients to get bedsores.

  • In Rockingham County, three of the county's five homes were fined for violations. One home was fined more than $168,000.

  • In Davidson County, each of the county's nine homes was cited for problems. Four homes failed to properly feed residents or adequately store or prepare food, according to the state.

    Souza, who serves as executive director of the N.C. Health Care Facilities Association, said he warned lawmakers years ago that if homes did not get more state money to hire workers, quality of care would decline. His Raleigh-based trade group represents the majority of the state's nursing homes.

    Nursing homes rely on federal and state governments for 85 percent of their revenue. About 74 percent comes from one program alone: Medicaid for the poor.

    As a result, taxpayers hold great sway over the changing economics in the $1.2 billion nursing home industry. Last year, for example, 20 percent of the state's homes operated in bankruptcy, a byproduct of the federal government's 1997 decision to change the way it reimburses nursing homes. And the situation may grow worse.

    Nursing home administrators say Medicaid already fails to cover the full cost of its patients' care. State lawmakers almost froze the amount of Medicaid money nursing homes receive at the current rate for the next two years. But after vigorous lobbying by nursing home operators and elder advocates, lawmakers agreed to a 3.5 percent increase to account for inflation in fiscal 2002. No increase is slated for fiscal 2003.

    "It went up, but it didn't go up enough," said Lt. Gov. Beverly Perdue, who encouraged lawmakers to support the increase.

    The trade group's Souza agrees.

    "I've been in long-term care 24 years, and I've never seen it this bad," Souza said. "People think nursing homes don't provide quality of care now. Just you wait; quality will get worse."

    But in some cases, such as Sutherland's, the care being provided was already of great concern.

    •••

    Norma Jean Sutherland's family did not know what to expect when their matriarch needed a nursing home. And family members hadn't expected Sutherland to need one so soon.

    She was just four years into early retirement when she lost her independence.

    A native of the mountain town of Creston in Ashe County, Sutherland worked for almost three decades as a trust officer in Wachovia's Greensboro and Winston-Salem offices.

    She favored stylish pocketbooks, fancy shoes and Cadillacs. Jewelry was a must, as was a dab of lipstick.

    But on July 5, 2000, Sutherland suffered a series of strokes and was taken to Moses Cone Hospital, where she was treated and referred for rehabilitation in a nursing home.

    Moses Cone gave Sutherland's daughter, Riley, the name of one nursing home, Carolina Commons at 308 W. Meadowview Road.

    A new wing had been built. Crisp wallpaper borders hugged unscuffed, freshly painted walls.

    Sutherland moved in July 18. After four weeks, Sutherland's private insurance ran out, and she returned home.

    Two weeks later, Sutherland, who was then 59, suffered another stroke, and the family scrambled to find another nursing home.

    Moses Cone gave Riley the names of two homes with beds available. Riley visited one and thought it looked like "an insane asylum from an Alfred Hitchcock horror movie."

    The stench of human waste was unbearable. One resident started to vomit as she sat in her wheelchair in the hallway, but workers paid the woman no attention, Riley said.

    The other home, Carolina Commons, was a familiar -- and welcome -- sight.

    Riley moved Sutherland in.

    But this stay would not go so smoothly as the first.

    Because the strokes had paralyzed Sutherland's left side and weakened her right arm, she was dependent upon others for help with most tasks, from bathing to walking.

    Riley, a former office manager, said she visited her mother daily on weekdays and twice each weekend day. She saw residents shouting for help -- sometimes for hours, she said.

    One resident calling for help was a man with soup spilled throughout his beard and on his shirt, Riley said. He was thirsty. When Riley brought him a glass of water, he guzzled it -- and then drank two more.

    Riley found pills in her mother's bed, suggesting the nursing aide did not watch to make sure Sutherland took her medicine. She had trouble swallowing because of her stroke. When Sutherland asked for help, employees told her to wait, Riley observed. Sometimes aides would not respond for more than an hour, Riley said.

    Riley stopped taking out-of-town business trips, afraid to leave her mother alone for even one night.

    She watched her once-stubborn mother retreat into herself, a change not uncommon among nursing homes residents, especially if neglect is involved, said Carol Teal, executive director of Friends of Residents in Long Term Care, an advocacy group in Raleigh.

    "We all learn to cope with the reality that exists in an institution," Teal said.

    Riley complained to the home's administrator, but she said little changed.

    Carolina Commons, like much of the industry, was plagued by high worker turnover last year. During 2000, the home hired and lost at least five administrators and five directors of nursing, the position overseeing patient care, according to state records.

    Carolina Commons has declined to discuss these issues. Dennis Tofano, Carolina Commons' administrator since September 2000, said he could not comment and referred questions to the home's corporate owner, Britthaven Inc. of Kinston.

    Britthaven's vice president of marketing, Lori Jones, asked the News & Record to put its questions in writing, which it did. Jones later said the company would not respond to the five pages of questions.

    •••

    Riley and Sutherland's experience is hardly unusual among North Carolinians.

    Most of the complaints filed against North Carolina nursing homes last year alleged poor care and unprofessional service, and state records back up many of these claims.

    Last year, the No. 1 violation among nursing homes was that they failed to ensure residents had a high standard of living, according to the state Division of Facility Services, which regulates nursing homes.

    The state defines a high standard of living as one that respects residents' rights, privacy and preferences.

    Thirty-six percent of homes provided services deemed to be unprofessional. This means employees did not follow appropriate procedure, such as using protocol set by the North Carolina Board of Nursing.

    And Triad nursing homes are not faring much better than their counterparts statewide.

    In High Point, state investigators issued 10 citations to Sunbridge Care & Rehabilitation for the Triad after a Sept. 27 inspection last year.

    A community panel that makes regular visits to five High Point nursing homes submitted reports to the Area Agency on Aging about the conditions at the Sunbridge center two months later. Complaints ranged from bad odors in patients' rooms to not responding to a resident's call for help.

    State investigators reported violations at Sunbridge ranging from verbal abuse and neglect of patients by staff members to allowing a patient to sexually abuse other patients.

    Sunbridge fixed the problems, all of which occurred in the home's behavioral unit for patients with Alzheimer's and other mental illnesses, said Dan Hill, spokesman for Sun Healthcare Group, the home's corporate parent in Albuquerque, N.M.

    Hill said the home anticipates investigators will visit it soon to conduct a new survey.

    "We won't see the same problems we saw last time," Hill said. "And hopefully we won't see any problems."

    At Brian Center Health & Rehabilitation in Eden in June 2000, state inspectors found 18 problems, five of which they considered a serious threat to residents' health. The home has been fined more than $168,000 since January 2000. Among other things, the home failed to prevent accidents and did not inform family members of a change in a resident's condition.

    The home has not yet filed an appeal with the state.

    Helen Myers, the home's administrator, said in a prepared statement: "We diligently strive every day to provide a safe and comfortable environment for our residents and staff. Nursing facility inspections are very thorough, and they cover numerous aspects of operating a facility. We take the results of our facility surveys very seriously and, when warranted, implement corrective action as appropriate."

    Nursing home administrators say state reports can be misleading. Souza with the nursing home trade group says the enforcement system is subjective, relying heavily on hearsay.

    Homes can also be penalized for relatively minor infractions, such as not giving each resident the same type of snack.

    Still, many residents and family members remain unsatisfied with the level of care they are receiving.

    Between Jan. 1 and June 30, the state received 1,018 complaints, 12 percent more than during the first half of 2000.

    Part of the increase comes from heightened vigilance from residents and families, as well as increased expectations as to what constitutes appropriate care.

    "We're Baby Boomers; we're used to shaking things up," said Sabrena Lea, a regional long-term care ombudsman with the state. Ombudsmen mediate disputes between families and nursing homes. Based in Greensboro, Lea, too, has watched the number of complaints grow.

    Long-term care advocates aren't the only ones receiving more complaints. Raleigh attorney Stephen Gugenheim specializes in lawsuits alleging nursing home neglect. His case load is growing. Fast.

    "I think we will see more and more verdicts against nursing homes," said Gugenheim, who is involved in two lawsuits against Carolina Commons.

    People should not expect perfection, said Wendy Sause, a one-time nursing aide and former long-term care ombudsman with the state.

    But nursing homes are a business, she said, and they must be held accountable for the services they provide.

    "Sometimes there tends to be the excuse of 'I'm sorry your mom didn't get taken to the bathroom and had to sit in urine and had her skin break down, but we just didn't have the staff,'" Sause said.

    "If they have problems, they need to fix them," she said. "We wouldn't accept a baby-seat manufacturer saying they didn't have enough staff, ... and that's why your baby fell out onto the floor."

    •••

    Sutherland's daughter, Riley, has considered filing a lawsuit against Carolina Commons, but watching her mother's health deteriorate exhausted her physically and mentally.

    Riley's family has been emotionally drained, too. Riley's husband, Rex, who works in the production department with the News & Record, took on more household chores, such as washing the family's laundry. The Rileys had less time for their young daughter and son. And they felt guilty for time spent at their Greensboro home instead of at Carolina Commons.

    By March, Riley had had enough. She filed seven complaints with the state against Carolina Commons.

    Later that month, state investigators spent three days at the 210-bed home, one of Guilford County's largest. Their report cited 28 deficiencies, or violations.

    The state agreed with four of Riley's complaints. According to the state's records, Carolina Commons' staff failed to provide timely incontinence care, to administer medications properly, to provide bathing/hygiene as scheduled and to follow doctor's orders for Sutherland.

    Carolina Commons, which has been fined $58,000 because of deficiencies found at the home, is appealing the findings from the March investigation.

    Nursing homes are required to submit a written plan of correction to the state when serious problems are found. According to Carolina Commons' plan, the home said it would train employees on "dignity issues."

    "The facility will continue to promote care for the residents in a manner and environment that maintains or enhances each residents' dignity and respect in full recognition of his/her individuality," the plan states.

    In late July, investigators returned to Carolina Commons and found more problems, ones that the state felt constituted "immediate jeopardy to resident's health and safety."

    Among the findings: Female residents were not protected from sexual advances by an aggressive male resident, and nursing aides did not receive required annual training.

    The home has not yet appealed the latest findings with the state, according to the Division of Facility Services.

    •••

    In April, Riley thought her prayers had been answered. A bed was open at another nursing home, Guilford Health Care Center at 2041 Willow Road in Greensboro.

    Riley moved her mother. Shortly after, Sutherland tried to get out of bed unassisted, but she fell forward, nursing aides told Riley. A worker found Sutherland lying in a pool of blood, Riley said.

    Sutherland was taken to Moses Cone, where she lapsed into a coma and died -- less than 36 hours after leaving Carolina Commons.

    Doctors told Riley the force of the fall had broken her mother's chin and shattered her dentures.

    Riley does not fault Guilford Health Care because she feels employees tried to be responsive to her mother's needs.

    But she still worries, even though she no longer has a loved one in a nursing home.

    "They broke her spirit. They destroyed her dignity," Riley said of her mother's treatment at Carolina Commons. "I moved her (to a new home) in the hopes of trying to rebuild, but I never got a chance."

    Contact Kerry Hall at 373-7061 or khall@news-record.com

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