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LIFE

Hoping, coping while waiting for a cure to diabetes

Tuesday, March 9, 2010
(Updated 3:00 am)

It was only after the elevator doors closed that we realized that our 5-year-old daughter, Harmony, was missing.

"Where's Harmony?" I shrieked as the people-packed elevator began to ascend.

Two floors later, I got off the elevator, ran down two flights of stairs and found her striking a nonchalant pose in the foyer. A kindly woman had stayed nearby until a guardian of some sort arrived. All was well.

Really, though, I needn't have worried.

The Grandover Resort & Conference Center in Greensboro was filled that weekend with mothers, fathers and grandparents all deeply concerned for the welfare of their children and grandchildren.

My family and some 900 other participants booked the place for the Juvenile Diabetes Research Foundation's North Carolina Statewide Retreat.

There for our 8-year-old daughter, Zoe, who has Type 1 diabetes, my family enjoyed yummy low-carbohydrate food, a brief dip in the kid-crowded pool and a chance to meet other parents facing the same challenges. For two days, Zoe was one of many kids with calloused fingers and an insulin pump strapped to her side.

The dialogue tended to repeat itself. We all had the same stories of a prolonged illness such as the flu, followed by copious urination, weight loss and hunger.

"We didn't have a clue" was the frequent refrain or "I had no idea how much work this disease is," followed by rueful smiles and knowing glances.

"And it's so expensive," many added.

The Saturday training sessions covered topics such as managing skills, parenting strategies, low-carbohydrate cooking methods and research updates.

The coping sessions offered by Dr. Echo Meyer, a faculty member at UNC-Chapel Hill's School of Medicine, were standing room only. All of us were willing to sit or lean against a wall in the large room if we could learn just one tactic that would make our lives easier.

We are tired and desperate. We are so tired.

Some of us have children who are so compliant that it breaks our hearts. And some of us have children who willfully endanger their health each day with skipped insulin doses and missed blood sugar tests.

The research updates were somewhat encouraging. As always, the cure is just within reach, maybe in five years. Maybe in my child's lifetime. Or maybe not.

But the "good" news, we learned as we slipped into our coats and put away our pens, is that more and more children and adults are getting this disease. About 40 new cases are diagnosed per day in this country, according to the JDRF Web site.

And the more people who develop it -- Dan Hurley alleges that it is a pandemic in his book "Diabetes Rising" -- the sooner we will see a cure. Our country literally cannot afford not to find one.

 

When not praying for a cure for her daughter, Janice Carmac works as an editorial assistant at the News & Record. Contact her at janice.carmac@news-record.com or 373-7098.

Comments

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Get A Clue

March 9, 2010 - 6:59 am EST

Here's hoping we continue to fund dedicated medical professionals and their worthy research.
I sincerely hope we don't follow the advice of others who seem to think we need to simply wait for a supernatural miracle. To those folks I ask this:
If your god is capable of bestowing a cure for JD and for whatever celestial reason is waiting 'for the right time," that makes your god culpable in the premature deaths of all those children who have passed because of JD. After all, he could have bestowed his "miracle" sooner and chose not to end the lives of all those innocent children.
We haven't even gotten to cancer, abuse, floods and famine yet.
Think about it.

pippi69

March 9, 2010 - 8:59 am EST

so, the good news is that more & more people are developing it, so that (in your somewhat warped view) will assure a cure to come along faster than not. I think that's kind of sick thinking. no one should have to wait for anything to reach epidmic proportions in order to advocate for a cure. I do empathize with your frustrations and truly hope scientists & the medical communities can reach a cure of this & numerous other maladies.

A.H.

March 9, 2010 - 12:38 pm EST

Thank you, Janice, for taking full advantage of the recent Family Retreat weekend planned by the Piedmont Triad Chapter of the Juvenile Diabetes Research Foundation and offered to families in every chapter across the state. Thank you for your fine article that spreads the word. The retreat's purpose is education and emotional support for parents and kids, most of whom live and cope with diabetes each day in relative isolation. I had the pleasure of volunteering with the large groups of children who had a great time with each other, and I was glad to observe animated conversations among the parents who apparently were grateful for the chance to learn about and discuss many topics. Grandover and other corporate sponsors enabled families to stay overnight for only $50, and the hotel filled up quickly with a long waiting list. The need is very apparent, and our chapter will continue to offer this program each year to try to meet it.

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