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OPINION

Doug Clark: Young cancer survivor touches senator

Wednesday, December 2, 2009
(Updated 3:00 am)

 

Taylor Bell wants to become a professional lobbyist after she graduates from East Carolina University with a political science degree in May. Why not? She's doing pretty well as an amateur.

Two weeks ago, she walked into Sen. Kay Hagan's Washington office and left with the Greensboro Democrat's promise to co-sponsor the bill that Bell was promoting.

Before you associate Bell with negative stereotypes about lobbyists, listen: She's a 23-year-old former star soccer player ... and lung-cancer survivor.

S 332, the bill Hagan promptly signed on to at Bell's request, is called the Lung Cancer Mortality Reduction Act of 2009. Among other provisions, it would expand research and prevention programs with the goal of cutting very high mortality rates by 50 percent by 2016.

Research and prevention? Doesn't everyone know what causes lung cancer?

Not in every case. Bell never smoked, but she developed a tumor in her lung that wasn't properly diagnosed when she was first examined.

"I was a big, big, big-time soccer player," the Wilmington native said in a phone interview last week. "It was my life."

As a high-schooler, she made an Olympic development team of the state's top 20 players. As a freshman at East Carolina in the fall of 2005, she competed on the varsity soccer squad.

"I wasn't starting, but I was getting playing time," she said. "Everything was going fine."

Then she began to experience tingling and numbness in her toes. Her stamina lagged. For the first time, she couldn't complete a fitness test of 10 120-yard runs in less than 18 seconds each. By Christmas, she was in too much pain to play anymore, but MRIs of her head and back didn't find anything.

The next year, she came down with pneumonia. "I thought I'd gotten hit in the ribs," she said. At student health services, she had a chest X-ray. A physician's assistant told her she had a spot on her lung but attributed it to the pneumonia. He gave her an antibiotic. Bell continued to feel sluggish but "thought it was college kid stuff."

Until October 2007, when she was struck with pain so severe she thought she had appendicitis or a cracked rib. A CT scan showed her left lung was collapsed and found a 3-4 centimeter tumor there. It was later diagnosed as a carcinoid -- lung cancer.

After surgery to remove a portion of her lung, Bell says she's cancer-free: "I'm good to go. There's an 85 percent chance it won't return."

She resumed her studies, works out and pushes for lung-cancer awareness.

People don't expect someone with lung cancer to look like Bell. "I'm cute, I'm skinny, I'm athletic, I'm a survivor," she said. "No one deserves to go through what I've gone through."

That message hit home with Hagan.

"It was an awesome experience," Bell said of her meeting with the senator, which was arranged by the Lung Cancer Alliance.

"Sen. Hagan immediately recognized me" because Bell and Hagan's daughter, Carrie, had played soccer against each other on traveling teams as teenagers.

Dusty Donaldson of High Point, also a lung-cancer survivor, attended the meeting.

When Bell told her story, Donaldson said, Hagan "was moved by compassion. You could see a mother's heart in Sen. Hagan, like 'This could be my daughter.' "

When Bell asked Hagan to co-sponsor the bill, Donaldson added, the senator said, " 'Well, of course I will.' It was really sweet. We all just hugged and thanked her."

Hagan recalled it as an emotional meeting. "I made sure I had a box of tissues out," she said Tuesday.

Later, Bell secured the support of her congressman, Rep. Mike McIntyre, for the House version of the legislation. And, at Donaldson's personal urging, Rep. Howard Coble also has become a co-sponsor.

Donaldson says the merits of the legislation are obvious, but the right messenger is important. Bell puts a sympathetic face on a disease that too often is shoved aside as a penalty for smoking.

"Taylor Bell was the perfect face for this senator," Donaldson said of the meeting with Hagan.

"Taylor is an incredible spokesperson for lung-cancer survivors," Hagan affirmed. "She can really articulate the need for research."

The former soccer player already is covering a lot of ground for her cause. Last week, she attended a cancer-related event in San Francisco. Much more of that is in her future.

"This is her calling in life," Donaldson said.

Comments

This article has been closed to new comments. Comments are generally closed after 14 days. However, comments may be closed earlier at the discretion of the News & Record.

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Pat

December 2, 2009 - 1:16 pm EST

It is so nice to see Taylor enjoying being such a wonderful adovcate for Lung Cancer. It is ashame though with all the posts to Taylor about the facts of Carcinoid Cancer as opposed to Lung Cancer, she is ignoring the fact that Lung Carcinoid needs to be followed even if they think they got all the tumor. Taylor needs to go to www.carcinoid.org and learn as much about Carcinoid as she has about Lung Cancer. Taylor sounds like a go getter. Please spend some time learning about the Cancer you had and become an advocate to Carcinoid also.
Good luck to you. And read some of Micky's comments in your other article. He has been dealing with Carcinoid longer then me and has a lot of knowledge you can gain from listening to him.

To Respond

December 2, 2009 - 4:08 pm EST

Why do you feel it is necessary to bring down this young girls story... you are not her doctor nor do you know the facts of her medical history. She was seen by the leading doctors in the nation and has had an amazing recovery, as a friend of her I am aware of her illness and treatment and your comments about how she doesn't know what kind of cancer she had is ridiculous. Be happy for her healthy prognosis and leave her alone.... if you don't have anything nice to say... keep it to yourself....

Pat

December 3, 2009 - 10:58 am EST

No I am not a doctor, but I do have Carcinoid and try to learn as much as I can about it because it is such a rare cancer and not a lot of doctors know about. I try to be a partner with my doctors by educating myself. I am not trying to bring down Taylor's story. I just read her story and if it is accurate, then Taylor has Lung Carcinoid which would be a nureo endocrine tumor on her lung. With Taylor being such an advocate for Lung Cancer now, I think her outgoing spirit, Taylor could bring a lot of awareness to the Lung Carcinoid Cancer she had which is much rarer then Lung Cancer, and needs as much awareness brought to it as possible.
I am not trying to be mean or bring down what she is doing, I just think she needs to become aware of Carcinoid and I think she has a voice to help the Carcinoid Community as well as Lung Cancer Community.
I wish Taylor the best and still recommend she go to www.carcinoid.org and learn all she can to become a Carcinoid advocate as well. Stay well Taylor!!!!

Raleigh37

December 6, 2009 - 1:24 pm EST

Congrats Taylor. And go you for not only being a survivor but taking the initiative to advocate for others who cannot be their own advocate. Appreciate the paper writing this story.

dibrown

December 7, 2009 - 8:33 pm EST

I am the mom of an 18 year old (17 years old when diagnosed) lung carcinoid patient. I follow the lungnoid group on the internet and just saw this article in a recent post. Laura is a student at High Point University in North Carolina and I'm pretty amazed to find another young lung carcinoid patient living so close by. Laura's story is pretty similar. She was an athlete (lacrosse player) with absolutely no symptoms when she had a sudden appendicitis attack in April of '08. A ct scan that was done to confirm appendicitis revealed an "abnormality" on her right lung.That began our long journey into carcinoid cancer. Anyway, I'd love to have Taylor's email address so that Laura can touch base with her. It is so rare to find other young carcinoid patients let alone two who live fairly close by each other. Laura is positive and while not completely cancer free is stable right now. I'd love for them to talk and share some of their feelings. If anyone can get me in touch with Taylor please e-mail me at .

Diane Brown

BIGNORSKE2001

December 14, 2009 - 10:16 pm EST

Hi, Diane. My name is Richard Burnson. I was in the room next to your daughter's at University Hospital in Basel, Switzerland when we were there for LU177 treatment in June. I'll be going back for my third and final treatment January 19. I hope Laura is doing well and enjoying her first year in college. It was a pleasure to meet you and your family. I was impressed by how close and supportive you were of each other. I wish the best for Laura's health and a great holiday season for your family.

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